Patient
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So, today I visited my new GP “armed” with an ICC definition, details of this group and Wendy’s book. I had a list of my current symptoms typed out as well for him to read. My wife explained that it had taken me many hours between rest periods and that I wasn’t able today to communicate very well.
He was absolutely brilliant! He was grateful for the information and was going to do some reading up. He was gentle and caring and at last I have a prescription to try. My sleep issues are horrendous at the moment.
This group and the work Wendy has put into it has transformed the way I manage and live with my ME. Everything is “easier” to deal with when I understand why. Thank you Wendy.
Anonymous
Reader · ME community
Advocate
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Thank you so, so much for these important, and “importantly repeated”, reminders. I wish I had encountered you (or someone like you, if such a person exists) years ago.
I had very mild ME/PAIS years ago — 70–90 on the Bell scale: scarcely ill at all — and was able to manage running even. “And if I can ‘manage’ it, I must do it! Exercise is Good!! Push it!” I just didn’t realise the consequences involve more than paying — only a bit, for me, back then — for exercise with slightly swollen glands, fatigue, weird body temperature fluctuations, and so on, for maybe a day or two; there is the likelihood that one is doing long-term damage.
Thanks to you, I’m finally taking pacing seriously. (Better late than never.) Total sea change for me. You may have rescued a life here. Thank you!
Group leader in Ireland
ME support group
