Voice for ME

Advocacy & awareness

Myalgic Encephalomyelitis affects millions world wide yet remains under-researched, under-funded and gravely misunderstood. I use my advocacy to try and change that and my art to escape what I cannot change.

Home/Voice for ME
Sunrise over hills

What is ME?

Myalgic Encephalomyelitis is a serious, chronic neurological disease marked by Post Exertion Neuroimmune Exhaustion. Symptoms vary greatly from person to person and can fluctuate in severity. 25% are very severe and live in dark quiet rooms for 90 - 95% of their lives.

~17–24 millionPeople affected worldwide
About 75%Unable to work full-time
About 25%Housebound or bedbound

Truth-Telling

Sharing the honest, lived reality of ME — the symptoms, the setbacks, and the strength — so no one feels invisible.

Recognition

Pushing for ME to be seen, believed, and taken seriously by medicine, media, and the wider world.

Hope & Action

Turning awareness into momentum — funding, research, and community for a future where ME is understood and treatable.

"Every story shared is a small act of resistance against being forgotten."

Get involved

How you can help

Small actions add up. Here are a few ways to stand with the ME community.

✶

Listen & believe
Take ME seriously. Believing someone is the first, and most powerful, form of support.

♡

Share the story
Pass on the book, the art, and the facts. Awareness is how change begins.

☼

Support research
Back ME charities and research. Funding is what turns hope into treatment.

Events

Talks, readings & appearances

02
Oct

ME Awareness Panel

Community Hall · Advocacy conversation with clinicians & patients
Panel discussion audience
20
Nov

Art & Words Workshop

Studio Session · Creativity as care for chronic-illness communities
Workshop session
Invite Wendy to Speak